Oops I Did It Again

About a month ago, I did something that I’ve told you guys before never to do. If you’re on medications for epilepsy, NEVER EVER let your meds run out. It can dangerous. It might even be life-threatening.

So of course guess what I did after Christmas? My Onfi ran out. When I tried refilling it, the pharmacy app told me I had run out of refills, too. They were having problems with getting hold of my neuro, and I had no meds for the next day. Or however long it took to find the doctor.

I thought I could get away with using some of my emergency meds instead.

Picture of a woman looking very fed up. Wording reads "Please tell me you're joking."
Nope. Not joking. Dumb dumb dumb.

This is a Very Bad Idea for a couple of reasons. First, you should never stop a medication cold turkey. Especially an anti-epileptic. That in itself can cause a seizure. Which might seem weird. But your brain cells have got used to being slowed down by the meds. If you suddenly stop, they’ll try and go right back up to the level of activity they had before – the level that gave you seizures.

The other reasons may or may not be true for you, depending on the medication you’re taking. The emergency pill I decided to take instead of the real one is Ativan (lorazepam). Ativan isn’t recommended for long-term use for seizure control. For one thing, you can develop tolerance to it – it can stop working. For another, it’s mildly addictive, like other similar drugs – Valium, Klonopin, and the rest.

So it shouldn’t have been a surprise to me when I had a couple of seizures New Year’s Eve. I went to the doctor last week and she kept me off driving indefinitely. And another appointment in six weeks. Blech. 😢

I felt pretty stupid. I feel stupid. Especially since I’ve told you this before.

My wife gave me a hint, after we’d had time to think. “You should be called the office and got the after hours doctor,” she said. I checked with the neuro and she agreed. They would have filled the prescription for me. If only if thought of it.

Take a lesson. Don’t be dumb. Fill your meds on time. Keep track of your refills. Make sure you never, ever run out.

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