For almost everyone, there’s a set of activities, foods, or different situations that can cause seizures. Pay attention to what they are, and figure out how to avoid them.
A really helpful tool to keep track of seizures, triggers, and more, is a seizure diary. I can’t recommend this enough. It can literally be a life-saver. Get a seizure diary and use it. You can use an actual pen and paper journal, or download an app to your phone. Health Storylines is what I use. It’s free for Android and iPhone. The Epilepsy Foundation of America also has My Seizure Diary. There are lots of others.
A seizure diary will let you track whether you took your medications and when. You can track your seizures – what kind you had, when, for how long. Most importantly, track things that happened before the seizure. Did you have enough sleep? Were you stressed? Feeling sick?
Every so often, and definitely before every visit to your neuro, go through your seizure diary and see if there’s anything that stands out: anything that might be related to any seizures you’ve had. Bring those up with the doctor and put together a plan to avoid or minimize them.
Stress and sleep deprivation are the two most universal seizure triggers. I’ll deal with them on their own. For now, just be aware of how much they might be making it more likely for you to have a seizure.
Look out for yourself. Stay strong. You can’t choose and control everything. You wouldn’t have epilepsy if you could. But you can control what you do about it. And you can start by finding what you can do to make seizures less likely. That’s something you can own.
Take care. And be good to yourself. Own it.